Bring Light to BBS is an organization founded by the Novetzke and Alms families- both of whom have kids who have been diagnosed with Bardet Biedl Syndrome (BBS). These two families developed Bring Light to BBS in 2014, weeks leading up to the Bardet Biedl Syndrome Family Association (BBSFA) being granted nonprofit status by the IRS. Bring Light to BBS was born out of a need for fundraising knowledge, experience and assets.

Our Mission

  • To improve the treatment and care of people with BBS by raising funds for research and education for parents, medical professionals and researchers
  • To offer all BBS families fundraising assets and a knowledge-base at little to no cost

Our Kiddos Shine Despite the Darkness that BBS Can Bring

What BBS Commonly Brings:

    •  Retinal degeneration leading to blindness
    • Obesity due to abnormal metabolism
    • Kidney disease potentially leading to renal failure

Please Help Us Bring Light to BBS

Bill Alms for Bring Light to BBS

BLBBS Group Photo